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Managing Patients With Hypermobility Disorders: They’ve Seen You, but Have You Seen Them?, 2026, Mintken et al.5 hrs

Managing Patients With Hypermobility Disorders: They’ve Seen You, but Have You Seen Them?

Mintken, Paul E.; Dommerholt, Jan; Francomano, Clair A.

Abstract
SYNOPSIS: Patients with hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS) frequently present to outpatient musculoskeletal practice.

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Defining Neuro-EDS: A Neuro-Predominant Phenotype in hEDS/HSD and Related Heritable Connective Tissue Disorders, 202...5 hrs

Defining Neuro-EDS: A Neuro-Predominant Phenotype in hEDS/HSD and Related Heritable Connective Tissue Disorders

Spoiler: Authors Bloom, Allison R.; Ruhoy, Ilene S.; Dass, Randall A.; Lerner, Amanda; Bolognese, Paolo B.; Klinge, Petra M.
Abstract
A subgroup of patients with hypermobile Ehlers–Danlos syndrome (hEDS), h...

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Austria: Matthias Wielscher - Medical University of Vienna, Center of Public Health5 hrs

Copied from the WE&ME Foundation thread

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Germany: ME/CFS Research Foundation5 hrs

From their newsletter, DeepL translation:

ME/CFS Research Foundation announces research funding strategy and appoints international scientific advisory board

Hamburg, August 18, 2023

Since 2022, we have been advocating for more biomedical research on ME/CFS. We and many other organizations, initiatives and people affected by ME/CFS a...

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